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Missed you
Missed you folks on the call today. It was recorded so I may be able to get a copy.
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MVP
Additionally, there will be a call today at 1 PM for whomever can and wants to make it to go over the MVP demo and we can discuss these aspects on the call as well.
Kasey Edwards is inviting you to a scheduled Zoom meeting.
Topic: MVP Review and Discussion
Time: Feb 5, 2026 01:00 PM Eastern Time (US and Canada)
Join Zoom Meeting
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Genes in Russian patients
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Genes in Russian patients
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HSP
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Patient Voices
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Rare Disease Month
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Genetic epidemiology
Genetic epidemiology of major HSP phenotypes around the world [PMID：35887006]
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Glad to have you aboard. We are all fighting the same battles you are. I have found that talking to others about what's going on, HELPS!