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Dette innlegget er fra en foreslått gruppe

Larry Landrie

Missed you

Missed you folks on the call today. It was recorded so I may be able to get a copy.

MVP
2 visninger

Dette innlegget er fra en foreslått gruppe

Larry Landrie
i går · publiserte i Winsights.life

MVP

Additionally, there will be a call today at 1 PM for whomever can and wants to make it to go over the MVP demo and we can discuss these aspects on the call as well.


Kasey Edwards is inviting you to a scheduled Zoom meeting.

Topic: MVP Review and Discussion

Time: Feb 5, 2026 01:00 PM Eastern Time (US and Canada)

Join Zoom Meeting


MVP
4 visninger

Dette innlegget er fra en foreslått gruppe

Larry Landrie

Genes in Russian patients


Genetics
3 visninger

Dette innlegget er fra en foreslått gruppe

Larry Landrie
i går · publiserte i SPG 4 #SPG4 #HSP4

Genes in Russian patients


Genetics
11 visninger

Dette innlegget er fra en foreslått gruppe

Larry Landrie
i forgårs · publiserte i Winsights.life

Patient Voices

https://madeai.com/thought-leadership/from-patient-voices-to-actionable-insights-why-social-media-listening-matters-for-rare-disease-companies/

Patient Voices
11 visninger

Dette innlegget er fra en foreslått gruppe

uchl1.spg79auchl1.spg79a
10 visninger
Bill Brydon
Bill Brydon
i forgårs
•

Glad to have you aboard. We are all fighting the same battles you are. I have found that talking to others about what's going on, HELPS!

Dette innlegget er fra en foreslått gruppe

Larry Landrie

Rare Disease Month

https://www.facebook.com/share/p/1BoVyqSDZm/

Rare Disease
27 visninger

Dette innlegget er fra en foreslått gruppe

Larry Landrie

Genetic epidemiology

Genetic epidemiology of major HSP phenotypes around the world [PMID：35887006]


Genetics
16 visninger
Larry Landrie
Larry Landrie
for 4 døgn siden

A Chinese group, I think

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