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Is everyone doing ok with their language? I added a language drop down list on the menu bars or you could use your browser to translate. I've added Russian, Italian, and French so far. Please let me know if i need to add more languages. Also, if we have folks who's native language is not English and would be willing to help review caregiver guides, it would be appreciated. Rosa's got Spanish covered.
Larry Landrie
Dec 3, 20251 min read
SP Foundation
https://sp-foundation.dm.networkforgood.com/emails/4318349?recipient_id=GCxnEWx5pXVrcPgvpm2udg||bGFuZHJpZTMzMzNAZ21haWwuY29t
Larry Landrie
Nov 24, 20251 min read
Bridging Gaps: A Patient-Oriented Neuroscience Research Symposium
https://www.facebook.com/share/p/1DWGQwV3sc/
Larry Landrie
Nov 19, 20251 min read
Artists
I don't know how many artists we might have or if we might have enough to qualify as a group? https://mailchi.mp/a6b8ae6cb70f/the-neuroarts-resource-center-launches-14195019?e=2c0468d94f
Larry Landrie
Nov 19, 20251 min read
Larry Landrie
Nov 17, 20250 min read
YouTube
https://www.facebook.com/share/p/1JVhZfqDcV/
Larry Landrie
Nov 14, 20251 min read
SPF November 2025 Update
Ambassadors, Here is a SPF November 2025 Update for your use and distribution to your local members. Dina Landphair sp-foundation.org SPF November 2025 Update 🦃 "You are NOT defined by your diagnosis" "Movement is Medicine" - Javier Tuel, personal trainer SPF ANNUAL CONFERENCE The SPF Annual Conference was in Washington DC on October 23 - 24, 2025 and now on YouTube - Click Here 2025 Annual Conference Program THURSDAY 8:30am - WELCOME TO WASHINGTON DC SPF WARRIORS 9:00am -
Larry Landrie
Nov 13, 20254 min read
Bridging Gaps: A Patient-Oriented Neuroscience Research Symposium
https://www.facebook.com/share/17FH7dZ9sy/
Larry Landrie
Nov 11, 20251 min read
Stockpile paradox of resilience
From @Giovannivalentinocarabinieri Recently heard about the Stockdale paradox of resilience and asked ChatGPT to apply its principals to living with HSP. Here’s what it came back with… Named after Admiral James Stockdale, who survived years as a prisoner of war, the paradox is: “You must never confuse faith that you will prevail in the end — which you can never afford to lose — with the discipline to confront the most brutal facts of your current reality.” Absolutely — and I
Larry Landrie
Nov 2, 20253 min read
HSP
https://www.facebook.com/share/p/1S14XRULRo/
Larry Landrie
Oct 26, 20251 min read
Larry Landrie
Oct 22, 20250 min read


Support and Community for Hereditary Spastic Paraplegia Members
Hereditary Spastic Paraplegia (HSP) is a rare genetic disorder that affects movement and coordination. For those living with HSP, finding...
Larry Landrie
Oct 10, 20254 min read


Sharing Advice: Thriving with Hereditary Spastic Paraplegia
Living with hereditary spastic paraplegia (HSP) can be a unique journey. For those affected, it often means navigating daily challenges...
Larry Landrie
Oct 10, 20255 min read


Building Connections: Stories of Hereditary Spastic Paraplegia
Hereditary Spastic Paraplegia (HSP) is a rare condition that affects the nervous system. It can lead to weakness and stiffness in the...
Larry Landrie
Oct 10, 20254 min read
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